tag:blogger.com,1999:blog-7982569191890671859.post222701097500936952..comments2023-04-06T15:48:13.791+01:00Comments on <center>You dont look sick!</center>: Act Now - to fight for your independenceUnknownnoreply@blogger.comBlogger30125tag:blogger.com,1999:blog-7982569191890671859.post-34486123360426243672013-02-15T17:55:32.155+00:002013-02-15T17:55:32.155+00:00I am so sorry to see this have you got any support...I am so sorry to see this have you got any support? if you come back and read this and need to talk or get some help leave a message <br /><br />Fibrogirlhttps://www.blogger.com/profile/07271833740620599470noreply@blogger.comtag:blogger.com,1999:blog-7982569191890671859.post-32251957992801011132013-02-15T13:16:05.318+00:002013-02-15T13:16:05.318+00:00I'm so depressed right now I want to die . the...I'm so depressed right now I want to die . the only bit of freedom i get is going to and thro the school in my car and now cameron wants to take that away from me why must he pick on us, the ones that need it most. having a pain free day to me is like winning the lottery i feel so happy but soon a pain free day will be just a distant memory as soon I'll have to crawl when i've reachedAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-7982569191890671859.post-41503201461708158912013-01-15T15:34:18.458+00:002013-01-15T15:34:18.458+00:00just signed up to sparticus,i'm disabled and f...just signed up to sparticus,i'm disabled and find it very painful,not just walking a few metres,but sitting in one position for any length of time.what this government is doing to the old and disabled is nothing short of inhumane and disgusting.both parties got power on a coalition of lies and broken promises,this recession was caused by greedy bankers who took enormous risks with the publicsAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-7982569191890671859.post-7968651510194117402013-01-08T19:06:01.701+00:002013-01-08T19:06:01.701+00:00Nope it hasnt come back to the house of commons th...Nope it hasnt come back to the house of commons think its early next week, still time to email your MP Fibrogirlhttps://www.blogger.com/profile/07271833740620599470noreply@blogger.comtag:blogger.com,1999:blog-7982569191890671859.post-68269603923409658422013-01-08T14:47:10.818+00:002013-01-08T14:47:10.818+00:00I keep having fantasies of designing a "pain ...I keep having fantasies of designing a "pain suit" along the lines of the pregnancy suit - to give not yet disabled or chronically ill people feel what it might be like to be in constant pain and for every step to be agony but have to do it regardless. I'm taking 50mg tramadol plus various other pain medications & random other specific drugs for my ailments _every_two_hours_. IKaylahttps://www.blogger.com/profile/07311646739768994560noreply@blogger.comtag:blogger.com,1999:blog-7982569191890671859.post-62696705123299907472013-01-07T21:33:50.776+00:002013-01-07T21:33:50.776+00:00Have we missed this now? Have only just seen the b...Have we missed this now? Have only just seen the blog!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-7982569191890671859.post-41326901971490129792012-12-22T05:34:02.987+00:002012-12-22T05:34:02.987+00:00I have emailed my MP, Jason McCarthy. Thank you. ...I have emailed my MP, Jason McCarthy. Thank you. Vanessa Haleynoreply@blogger.comtag:blogger.com,1999:blog-7982569191890671859.post-66324214739382049262012-12-21T17:37:38.512+00:002012-12-21T17:37:38.512+00:00Sent email to Aidan Burley , will not get a reply ...Sent email to Aidan Burley , will not get a reply or any empathy from that nazi lover but at least it helps fill his email box. Have also made Davjd Winnick aware, a neighbouring labour MP who has consistently argued against the WRB and I know will be vocal about it. Thanks for doing this :)daisybeebeehttps://www.blogger.com/profile/17582419811836925241noreply@blogger.comtag:blogger.com,1999:blog-7982569191890671859.post-46651192852068753732012-12-21T08:26:50.287+00:002012-12-21T08:26:50.287+00:00Thats a fantastic letter thank you - and as you sa...Thats a fantastic letter thank you - and as you say anyone could become disabled at any time :) many people will be heartened at your support, as often for them it feels a lonely struggle :) Fibrogirlhttps://www.blogger.com/profile/07271833740620599470noreply@blogger.comtag:blogger.com,1999:blog-7982569191890671859.post-34695805930117399332012-12-20T22:55:18.012+00:002012-12-20T22:55:18.012+00:00All done - with some examples I used googlemaps di...All done - with some examples I used googlemaps directions and with others zoomed in to the level with a 20 metre ruler and got the ruler next to the trip I was trying to describe. This is what I sent her with pictures and my local locations removed:<br /><br /><br />I am a constituent of yours writing about the proposed maximum limit of 20 metres that someone is unable to walk before becoming CMGhttps://www.blogger.com/profile/04012749223127804029noreply@blogger.comtag:blogger.com,1999:blog-7982569191890671859.post-70444485654799238642012-12-20T20:44:59.608+00:002012-12-20T20:44:59.608+00:00No email set up at the moment as have recently cha...No email set up at the moment as have recently changed provider and have no clue how to set it up in Outlook - der! My MP is Claire Perry, so unlikely to make much difference anyway :(Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-7982569191890671859.post-35294378359286295422012-12-20T15:52:35.126+00:002012-12-20T15:52:35.126+00:00Thank you lovely, It never ceases to amaze me the ...Thank you lovely, It never ceases to amaze me the lack of understanding if only it were so simple as go to the gym!Fibrogirlhttps://www.blogger.com/profile/07271833740620599470noreply@blogger.comtag:blogger.com,1999:blog-7982569191890671859.post-20518212196818835992012-12-20T15:51:44.914+00:002012-12-20T15:51:44.914+00:00I know they dont - its hard to really understand s...I know they dont - its hard to really understand sometimes but i find if i do sometihng i feel a bit more like i am worth something Fibrogirlhttps://www.blogger.com/profile/07271833740620599470noreply@blogger.comtag:blogger.com,1999:blog-7982569191890671859.post-51918156860416114722012-12-20T15:50:48.894+00:002012-12-20T15:50:48.894+00:00Fab thank you - I had a reply from my MP today, pl...Fab thank you - I had a reply from my MP today, plus copy of letter he sent to IDS etc - that was quick - im a firm beleiver if enough of us fill thier post bags and in boxes they get twitchy <br /><br />hmmm i never quite get my head round all the email formats either :)<br />Fibrogirlhttps://www.blogger.com/profile/07271833740620599470noreply@blogger.comtag:blogger.com,1999:blog-7982569191890671859.post-45204596547049851862012-12-20T15:41:12.835+00:002012-12-20T15:41:12.835+00:00Done - sadly, I couldn't figure out how to sen...Done - sadly, I couldn't figure out how to send as inline images in gmail (although the email looked ok, when I click to check the sent it loses the format) - luckily I posted direct links as well...Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-7982569191890671859.post-90659960371246774532012-12-20T14:45:53.734+00:002012-12-20T14:45:53.734+00:00People don't realise how much pain we are in, ...People don't realise how much pain we are in, morphine only takes the edge off if now,have I gone past my sell by date, already, Oh! it's because we still have to keep the rest of the world,isn't it,we are only a small country....Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-7982569191890671859.post-11779661728444635252012-12-19T19:37:39.960+00:002012-12-19T19:37:39.960+00:00Just done and sent away.I think my MP is getting f...Just done and sent away.I think my MP is getting fed up with letters from me. He must think im stalking him.Public transport in Cornwall is pants. However i failed at my tribunal.I was told to get out of my wheelchair,walk everywhere,join a gym and get a job.<br />CherylAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-7982569191890671859.post-74860395480264841142012-12-19T17:59:12.775+00:002012-12-19T17:59:12.775+00:00Great idea Beth glad i could help... and thanks fo...Great idea Beth glad i could help... and thanks for the google mesure info would never have worked that out... DxxxAnonymoushttps://www.blogger.com/profile/05013270182960251709noreply@blogger.comtag:blogger.com,1999:blog-7982569191890671859.post-86225052528898449752012-12-18T19:52:19.436+00:002012-12-18T19:52:19.436+00:00Hi
This is a great idea - have just contacted my ...Hi<br /><br />This is a great idea - have just contacted my MP Frank Dobson - hope we get a result<br /><br />ChrisAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-7982569191890671859.post-73807125495389130692012-12-18T09:37:47.579+00:002012-12-18T09:37:47.579+00:00Hi Beth - thanks for this - have sent an e-mail wi...Hi Beth - thanks for this - have sent an e-mail with google maps pic to my MP - it's more than 20 metres from my front door to get to my car too - ridiculous!! Over 140 metres to the nearest bus stop too. Aaaargh!Marilynhttps://twitter.com/marilf000noreply@blogger.comtag:blogger.com,1999:blog-7982569191890671859.post-29507126219883552162012-12-18T06:25:44.052+00:002012-12-18T06:25:44.052+00:00I have metal rods in my spine chronic pain on morp...I have metal rods in my spine chronic pain on morphine can't sit nor stand for more than an hour I have been told I can attend work with the use of a mobilty scooter or wheelchair I am not eligible for these DLA just been stopped ESA basic rate and on the breadline (I can't work any way) so hyperthetical but how can they offer such ideas with no entitlement?Ms pupcathttps://www.blogger.com/profile/06641084977411526801noreply@blogger.comtag:blogger.com,1999:blog-7982569191890671859.post-17169129027723155112012-12-17T18:08:53.487+00:002012-12-17T18:08:53.487+00:00This is bark raving mad! This could pit ambulant d...This is bark raving mad! This could pit ambulant disabled people against wheelchair users! I spent 4 years in a wheelchair full-time but couldn't srlf-propel, now I am 'able' to use a rollator but with a good deal of pain and still qualify for the high rate mobility component- without which I wouldn't even be able to get to the supermarket due to where I live! Please don't Rowanmaya Deehttps://www.blogger.com/profile/07634562038066137672noreply@blogger.comtag:blogger.com,1999:blog-7982569191890671859.post-52296891402795534542012-12-17T18:02:33.714+00:002012-12-17T18:02:33.714+00:00Oh my life i bloomin hope not - we will have to se...Oh my life i bloomin hope not - we will have to see. the Blue Badge scheme went out to consultation - it ended in October we dont know what outcome is yet. As for ESA I seriously hope not. Fibrogirlhttps://www.blogger.com/profile/07271833740620599470noreply@blogger.comtag:blogger.com,1999:blog-7982569191890671859.post-57521271766729931642012-12-17T17:59:56.178+00:002012-12-17T17:59:56.178+00:00Just a thought. If PIP says 20m, won't blue ...Just a thought. If PIP says 20m, won't blue badge and ESA rules be changed to 20m to match?Scrimshaw's Firehttps://www.blogger.com/profile/17585244907779030649noreply@blogger.comtag:blogger.com,1999:blog-7982569191890671859.post-58814943799081078902012-12-17T14:10:57.234+00:002012-12-17T14:10:57.234+00:00Thanks Emily :) xThanks Emily :) xFibrogirlhttps://www.blogger.com/profile/07271833740620599470noreply@blogger.com